Helpful Resources
Unsure where to start? Click here to access the Daughterhood Roadmap.
Resources for all things caregiving
Facts about dementia, resources and tips for caregivers
Search for a care manager professional (Geriatric Care Manager)
Search for local Area Agency on Aging that provides information, referral and support
Caregiver support programs for veterans
International End-Of-Life Doula Association
Resources and Death Doula locator
NCOA delivers the resources, tools, best practices, and advocacy our nation needs to ensure that every person can age with health and financial security.
We work to change the future for women and Alzheimer’s by focusing on the four pillars: research, education, advocacy and clinic care.
The Alliance conducts research on policy analysis, develops national best-practiced programs, and works to increase pubblic awareness of family caregiving issues.
Find health and drug plans, providers and ratings
State Health Insurance Assistance Program – One on One counseling and assistance navigating Medicare
How to apply for coverage, outreach materials and more
Search for local elder law attorney
The largest nonprofit organization representing hospice & palliative care programs and professionals in the U.S.
The U.S. Government’s lead agency on aging and Alzheimer’s disease and related dementias research. Also provides Caregiving worksheets
A safe and secure way to organize, discuss and share your health information with those who matter
End Well is a nonprofit on a mission to transform how we think about, talk about, and plan for the end of life.
Strength-based and proactive dementia care focusing on what’s left, not what’s lost.
Books we love
Caring for Aging Parents
When Your Aging Parent Needs Help: A Geriatrician’s Step-by-Step Guide to Memory Loss, Resistance, Safety Worries & More
—Leslie Kernisan, MD, MPH
Successfully Navigating Your Parents’ Senior Years Critical Information to Maximize Their Independence and Make Sure They Get the Care They Need
—Star Bradbury
Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve
—Edward G. Rogoff
Stand by Me: A guide to Navigating Modern. Meaningful Caregivng
—Allison J. Applebaum, PhD
Dementia
The Problem of Alzheimer’s: How Science, Culture and Politics Turned a Rare Disease into a Crisis and What We Can Do About It
—Dr Jason Karlawish
Dementia With Dignity: Living Well with Alzheimer’s or Dementia Using the DAWN Method
—Judy Cornish
Diagnosis Dementia: Your Guide for Eldercare Planning and Crisis Management
—Nicole J Smith
Memoirs
Can’t We Talk About Something More Pleasant?: A Memoir
—Roz Chast
My Parent’s Keeper : The Guilt, Grief, Guesswork and Unexpected Gifts of Caregiving
—Jody Gastfriend
Alzheimer’s Daughter: A Memoir
—Jean Lee
Support for the Caregiver While You are Caring
The AARP Caregiver Answer Book
—Barry Jacobs, PsyD and Julia Mayer, PsyD
Take Back Your Life: A Caregiver’s Guide to Finding Freedom in the Midst of Overwhelm —Loren Gelberg-Goff, LCSW
Take Your Oxygen First: Protecting Your Health and Happiness While Caring for a Loved One with Memory Loss
—Leeza Gibbons
Caring for Our Parents: Inspiring Stories of Families Seeking New Solutions to America’s Most Urgent Health Crisis
—Howard Gleckman
End of Life
End of Life Guidelines Series: A Compilation of Barbara Karnes Booklets
—Barbara Karnes
The End of Your Life Book Club
—Will Schwalbe
Being Mortal: Medicine and What Matters at the End
—Atul Gawande
Extreme Measures Finding A Better Path to the End of Life —Jessica Zitter, M.D.
Grief
Permission to Mourn: A New Way to Do Grief
—Tom Zuba
The Grieving Brain: The Surprising Science of How We Learn from Love and Loss
—Mary Fraces O’Connor, Ph.D.
The Grieving Body: How the Stress of Loss Can Be an Opportunity for Healing
—Mary Fraces O’Connor, Ph.D.
Believe: A Gift to Celebrate New Beginnings
—Dan Zada, Kobi Yamada